“It’s like hanging a lead weight around your neck. People are kind, they don’t mean to be unkind, but they don’t realise how painful it is for the person with Alzheimer’s to have that label attached. Doctors talk to your carer, as if you’re an object or a child before talking period. That protective silence is painful and can send a lot of people deep into a shell. I find it hard to visualise the future. I hope it doesn’t get worse. But then that would come to stage when I wouldn’t realise that I’ve got something worth remembering anyway. I don’t know. I hope it doesn’t get any worse; it’s a horrible thought.”